Autism Parenting

10 Concerns of a Mom with an Actually Autistic Child

As a mom, I always wonder if I’m doing what’s right for Kyson. Often, I sit a contemplate about the “what ifs” and “maybes” I should try something else. Would he like it? Would it benefit him?

Next week Kyson turns 6, next month we celebrate 2 years of him being in ABA therapy, and this upcoming school year he will be one of the youngest 1st graders. Is it just me or am I the only one who fears everything in his path.

Reading blogs and stories from the community who are “actually autistic” scares the hell out of me. Will he resent me one day for doing all this for him?

Top 10 Concerns of a Mom of an “actually autistic” child

  1. Who will love him if (knock on wood) I’m no longer here?

I think this one tops it for most parents, the fear of what will happen when you are no longer here. If you should die unexpectedly, then what will happen to him?

2. Will he ever be able to express his needs?

We’re getting there, baby steps. I hope to get him comfortable enough so that when the day does come and I’m no longer here, he’ll be able to approach someone to ask for help.

3. Will he hate his childhood cause I made him do all this?

I think this is only because Autism is still so new to me. I feel like I learn something new every day. At least Kyson does teach me little lessons every day, I just hope that he doesn’t resent me for trying what I only knew I could.

4. Will he resent me for pushing him too many times?

The many tantrums we’ve overcome and look forward to, I know there will be many. Will he resent me for always pressuring him to try his best? One day, perhaps he may be able to tell me and I pray he won’t resent me for it.

5. Will he have friends, date, get married, have children?

I hate to say it, but will he ever be normal? Will he grow up to have a friend he can trust, will he meet someone to make him feel whole and quite honestly the number one question…will I be a Grandma?

6. Will he be able to function within society?

I hope he finds his passion one day and finds a career that will make him happy. No matter what the career path is.

7. Will his failures be blamed because of his parenting?

8. Will he learn self-awareness to lead a fulfilling life?

9. Is he happy?

10. Who will love him when I’m no longer here?

As I note “who will love him when I’m no longer here?” as number 1 and number 10, only because it is the question that runs again and again in my head. It is my most concerned fear for his path in his future.

Heartbreaking

I think many parents with children who have special needs will always ask themselves this. We fear that it’s only because we know our children’s needs best. No one will ever know them as we do. No one will ever go above and beyond for them but yourself.

My heart breaks as I write this. It’s how much I feel about his future.

We only want what’s best, but yet we fear all the adversity our child will face. Will children understand that we tried our best, we did the best we could, and there isn’t a day that goes by that we don’t worry?

Conclusion

Parenting is so hard! But then we will second guess and wonder “did I “really” do the best I could?”

We will find comfort in other parents who struggle and have similar situations, but eventually still think, no one will ever know my child like I know him.

A concerned mother,

-Anna MV

Actually Autistic

Anna MV

A Hmong woman practicing life finding art in everything. Blogger of Family, Life, Culture, Autism, Self Awarenes

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2 Comments

  1. I can relate. I am always wondering if I am doing the right thing. And I do not find a lot of the “actually autistic” sites helpful – there seems to be this hatred towards parents the second you say you have an autistic child. And that’s not every “actually autistic’s” point of view but I’ve been harassed a few times so I just stay away. I find support from other parents. We DO know our children best. We know their likes, their triggers. We know what they need to soothe. And some kids really DO require more support than a stranger could understand. I think you are doing a great job for Ky. You provide him love and support with his best interests in mind. We don’t know what the future holds, but I bet Ky will forever be grateful for you.

    1. I’m so glad you can relate! Thanks so much for your kind words, I truly appreciate it! You’re right, there seems to be this hatred towards parents when you say you have an autistic child. Honestly, I just have to stay away from reading the views from “actually autistics” because most of them are down right scary! I read one from a teen who hated therapy, always having to hit the next goal and pointing to stupid pictures. I couldn’t help but think that, that would be Kyson one day. Whew, I’m such an overthinker!

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